| Welcome to The Chiari Center Foundation |
|
The diagnosis of Chiari (Kee-AR-ee) Malformation is made when the lower part of the brain descends into the spinal canal. In some patients, this can interrupt the flow of cerebrospinal fluid between the brain and the spinal canal that occurs with every heart beat. However, the presence and severity of symptoms may not be directly related to the degree of brain decent. Therefore, the diagnosis and treatment of Chiari Malformation remain a challenging medical problem to both patients and physicians.
The Chiari Center Foundation has a vision for global Chiari Malformation Awareness, Support, and Research. Working to become the largest Chiari network in the world, we will strive to achieve our mission to make everyone aware of Chiari, support anyone with Chiari to know that they are not alone, and inform patients and care-givers about research and up-to-date treatments available.
The Chiari Center Foundation was started as a grass roots organization founded by Jamie Lynn Sopczak, after the frustrations she encountered when first diagnosed with Chiari in September, 2006. She was diagnosed about four months after her initial symptoms. When Jamie started fighting her Chiari in January, 2007, she knew that something had to be done so that no one would ever face the medical uncertainty and misdiagnoses she lived through.
She is asking you to join her in her mission to create a worldwide network of Chiari patients, survivors, and their family and friends as well as care givers, physicians and researchers in order to progress the understanding and treatment of this not well understood medical problem that was first identified a century ago. |
| |
|
|
|
|
|
 |
| Coming Soon! |
|
|
|
|
|
| |
| Chiarian of the Month |
|
Coming Soon! |
|
|
|
|
|
|
|
|
| |
| Donate Now! |
|
| We are working every day to fight Chiari, and we need your help! |
|
 |
|
|
|
|
|
|
|
|
